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  3. Preventive Health Care For Children, Teens and Young Adults
  4. Longitudinal Follow-Up For Newborn Screening Conditions
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Children and Youth with Special Health Needs (CYSHN)

  • CYSHN Home
  • About CYSHN
  • Information and Resources
  • Diseases and Conditions

Programs

  • Birth Defects Monitoring and Analysis
  • Early Hearing Detection and Intervention
  • Follow Along Program
  • Longitudinal Follow-up for Newborn Screening Conditions

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  • LPH Partner Resources
  • Data
  • Public Health Lab
  • Minnesota Autism Resource Portal

Children and Youth with Special Health Needs (CYSHN)

  • CYSHN Home
  • About CYSHN
  • Information and Resources
  • Diseases and Conditions

Programs

  • Birth Defects Monitoring and Analysis
  • Early Hearing Detection and Intervention
  • Follow Along Program
  • Longitudinal Follow-up for Newborn Screening Conditions

Related Sites

  • LPH Partner Resources
  • Data
  • Public Health Lab
  • Minnesota Autism Resource Portal
Contact Info
Children and Youth with Special Health Needs
651-201-3650
1-800-728-5420 (toll-free)
health.cyshn@state.mn.us

Contact Info

Children and Youth with Special Health Needs
651-201-3650
1-800-728-5420 (toll-free)
health.cyshn@state.mn.us

Newborn Screening Propel

Newborn Screening (NBS) Propel aims to improve the newborn screening system for all Minnesota infants and their families. MDH is partnering with RTI International to implement focus groups and administer a survey to learn more about parents and family's experiences with the newborn screening system. Parents and caregivers of infants and children identified with congenital cytomegalovirus (CMV) through newborn screening will be invited to participate.  There will also be an opportunity for providers working with infants and children with congenital CMV to provide input in key informant interviews.  

Family focus groups have now concluded. Thank you to all who participated! Key informant interviews with providers are ongoing. Survey distribution to families will begin in a couple months. 

This project is being administered through federal funding from the Division of Services for Children with Special Health Needs NBS Propel Awards.  

Your feedback is important to us. However, family focus groups have ended. Please be on the lookout for an invitation to participate in the NBS Propel Family Survey in a few months.  

If you are a provider, please note that provider interviews are ongoing. Please fill out the interest form provided to you, if you wish to participate.  

Infants and children diagnosed with newborn screening conditions, parents and caregivers of children with newborn screening conditions, healthcare providers, and public health professionals will benefit from what we learn through NBS Propel.  

No. Your participation is up to you. Nothing will happen if you decide not to participate. You can skip any question and you can stop at any time. 

MDH has partnered with RTI International for this project. The information gathered by RTI International will be shared back with MDH to improve the newborn screening system for all Minnesota families and infants. 

The MDH Newborn Screening Program collects information from hospitals and clinics for infants and children diagnosed with over 60 conditions included on the newborn screening panel, including congenital CMV. We use the information that we gather to know if children and their families get the support and resources they want and need.

For more information on data collection, please refer to Questions & Answers about Data Collection: Long-term follow-up for children with newborn screening conditions.

Who do I contact with questions?

Please contact health.cyshn@state.mn.us or call 651-201-3650 for more information.

 

Tags
  • children youth
Last Updated: 01/22/2025

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