Children and Youth with Special Health Needs (CYSHN)
Programs
- Birth Defects Monitoring and Analysis
- Early Hearing Detection and Intervention
- Follow Along Program
- Longitudinal Follow-up for Newborn Screening Conditions
Related Sites
Contact Info
Longitudinal Follow-up for Newborn Screening
Newborn Screening Propel
The Newborn Screening (NBS) Propel survey is being sent to parents and caregivers of children diagnosed with congenital cytomegalovirus (cCMV) through newborn screening. The information from the NBS Propel survey will help MDH identify ways to improve the newborn screening system for all Minnesota infants and their families. If you receive a survey, please consider completing it. https://www.health.state.mn.us/people/childrenyouth/fap/index.html
What is Longitudinal Follow-up?
Longitudinal Follow-up helps children with conditions identified through Minnesota’s Newborn Screening Program and their families. We support children as they grow and families as they navigate education, health care, family supports, and other systems.
We work with parents, health care providers, educators, local public health nurses, and others across the state to:
- Connect children who have been diagnosed with a newborn screening condition and their families to resources and services in their communities.
- These resources include but are not limited to:
- assistance with finances, insurance, or transportation;
- access to food or child care;
- connection to home visiting, early intervention, educational supports, family support organizations, or local public health.
- These resources include but are not limited to:
- Collect and study data to:
- Make sure children and their families are getting the information and services they need.
- Better understand how early identification affects children’s health as they grow.
- Identify gaps in support and make improvements.
- Use a health equity lens to guide policy and decision-making.
For more information:
- Congenital Heart Disease Resources Brochure
- Considerations for Public Health Newborn Screening Follow-up Protocols for X-ALD, MPS I, and Pompe Disease
- Diseases and Conditions Identified in Children
- Early Hearing Detection and Intervention Parent Letter and FAQ
- Longitudinal Follow up Fact Sheet (PDF)
- Newborn Screening in Minnesota
- Questions & Answers about Data Collection
- Questions & Answers about Data Collection (Amharic)
- Questions & Answers about Data Collection (French)
- Questions & Answers about Data Collection (Hmong)
- Questions & Answers about Data Collection (Karen)
- Questions & Answers about Data Collection (Oromo)
- Questions & Answers about Data Collection (Pashto)
- Questions & Answers about Data Collection (Russian)
- Questions & Answers about Data Collection (Somali)
- Questions & Answers about Data Collection (Spanish)