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MinneStories™: Blood Spot Screening
In MinneStories™, we record and share families’ stories about their own, personal experiences of being impacted by newborn screening. Below are all the MinneStories™ in which blood spot screening identified a condition, told by the people who were affected.
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Kinda a Nice Vegetarian Diet
Blood spot screening | 4:48
Recorded on October 15, 2018
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Kinda a Nice Vegetarian Diet Audio Text (PDF)
Joe and Becca talk with each other about their non-identical twins, Sam and Grace, who both have phenylketonuria (PKU). The twins share what living with PKU is like for them and Joe shares his approach and advice when talking with newly diagnosed families.
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Chocolate Everywhere
Blood spot screening | 3:45
Recorded on January 6, 2017
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Chocolate Everywhere Audio Text (PDF)
Paula and her daughter, Andrea, discuss life living with phenylketonuria (PKU). They share memories from Andrea’s childhood that were impactful and shaped their approach to normalize the ways PKU impacted her life.
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Fierce Advocate
Blood spot screening | 4:45
Recorded on June 27, 2016
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Fierce Advocate Audio Text (PDF)
Rae and Dr. Nelson describe their journey with her son's diagnosis of sickle cell disease and how it has shaped her into the advocate she has become today. Rae's son was found to have sickle cell disease on the newborn screen.
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Our Normal
Blood spot screening | 3:46
Recorded on July 17, 2016
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Ashley and Jeremy share how taking things one day at a time has helped their family maintain a "normal life" after their son, Carson, was identified with cystic fibrosis through newborn screening.
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Gabe-orade
Blood spot screening | 2:24
Recorded on June 21, 2016
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Gabe talks with his mom, Jen, about the ways he has incorporated MCAD into his life. Jen shares her advice for other families dealing with this disorder, but also the many ways they are just a typical family.
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Backstage Pass
Blood spot screening | 3:14
Recorded on June 17, 2016
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Backstage Pass Audio Text (PDF)
Rachel and Marsha discuss Rachel’s son, Cooper, and his diagnosis of MCAD deficiency found through newborn screening. Rachel shares her story of learning about her son’s diagnosis, a visit to the ER, and the opportunities that exist for him in spite of his diagnosis.
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The Blind Eye & the Worrywart
Blood spot screening | 4:27
Recorded on May 19, 2016
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The Blind Eye & the Worrywart Audio Text (PDF)
Nicole and Travis, parents of two girls with cystic fibrosis (CF), talk about their different approaches to parenting. They talk about the girls' unique personality traits that help them tackle this condition along with their son's determination to cure CF for his sisters.
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Amazing Little Boy
Blood spot screening | 4:52
Recorded on April 8, 2016
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Amazing Little Boy Audio Text (PDF)
During the midst of their son’s medical crisis, Adam and Jenni learn through newborn screening that he has a serious metabolic disorder. Listen to their story to hear them share their experience and how time has provided a new outlook of hope and perspective for their family.
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Just the Way You Are
Blood spot screening | 2:25
Recorded on March 26, 2016
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Just the Way You Are Audio Text (PDF)
Chris and Karen discuss the day their daughter, Sophia, was born and the guilt they felt when first learning about her disease. Now, years later, they focus on how amazing Sophia is and the joy she brings to their lives.
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Every Label, Every Time
Blood spot screening | 2:05
Recorded on March 17, 2016
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Every Label, Every Time Audio Text (PDF)
Sarah and her son, Evan, discuss Evan's diagnosis of galactosemia. They describe the importance of finding food that is safe for him and how grocery shopping is no longer a simple activity.
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